Cystinosis Research Foundation Calls for Proposals; $1.1 Million Available for Research
(firmenpresse) - IRVINE, CA -- (Marketwire) -- 03/14/12 -- The Cystinosis Research Foundation -- the largest privately supported source of research funds for the study of cystinosis, a fatal genetic disease -- has issued its Spring 2012 Global Call For Research Proposals And Fellowships. The organization has allocated $1.1 million for research in this round of funding.
CRF President Nancy Stack said the Cystinosis Research Foundation utilizes a Scientific Review Board comprised of leading cystinosis experts. The chair of the CRF Scientific Review Board is Dr. Corinne Antignac. The SRB follows grant review guidelines established by the Cystinosis Research Foundation and provides independent, objective reviews and recommendations for each research proposal based on the National Institutes of Health scale of standards and advises the CRF on the scientific merits of each proposal.
"Funding by the CRF has opened up exciting new fields of study, leading to promising new treatments and a cure for cystinosis. We expect a strong response from scientists, many of whom are in our worldwide network of cystinosis researchers. Since 2003, the CRF has funded nearly $15 million in research," said Nancy Stack, President of the CRF.
Grant and fellowship proposal guidelines are available on . The proposal deadline is April 23, 2012.
Cystinosis is a metabolic disease that slowly destroys every organ in the body, including the liver, kidneys, eyes, muscles, thyroid and brain. In patients with cystinosis, the amino acid cystine accumulates in the tissue due to the inability of the body to transport cystine out of the cell. This causes development of crystals, resulting in early cell death. There is a drug that can prolong the patient's life, but there is no cure.
CRF funding has led to development by Raptor Pharmaceuticals of RP103, a delayed-release cysteamine treatment whose application to the federal Food and Drug Administration is expected to be approved this year.
The CRF also created the Cure Cystinosis International Registry, the first cystinosis registry. Cystinosis patients from 32 countries have enrolled in the CCIR, a collaboration of 16 cystinosis advocate foundations and which has been translated into Spanish, French and Portuguese. Its purpose is to consolidate information about cystinosis patients into a single data repository which will help advance research and clinical trials leading to future treatments and cures.
Nancy Stack and her husband, Geoffrey, a managing director of the SARES REGIS Group, an Irvine real estate company, have a daughter, Natalie, 21, with cystinosis.
Every dollar raised by the CRF is committed for medical research. Administrative costs are privately underwritten.
For more information, visit or call (949) 223-7610.
Cystinosis Research Foundation
Zoe Solsby
(949) 223-7610
Art Barrett
(714) 602-6021
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Datum: 14.03.2012 - 23:16 Uhr
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